Federal Agencies

  • DisabilityInfo.gov — general site for disability-related information and resources
  • AIDD—Administration on Intellectual and Developmental Disabilities
  • CDC—Centers for Disease Control and Prevention
    • NCBDDD—National Center for Birth Defects and Developmental Disabilities
  • CMS—Centers for Medicare and Medicaid Services
  • DHHS—Department of Health and Human Services
    • ACF—Administration for Children and Families
  • HUD—Department of Housing and Urban Development (information for people with disabilities)
  • NIH—National Institutes of Health
    • NICHD—National Institute of Child Health and Human Development
    • NINDS—National Institute of Neurological Disorders and Stroke
  • NSF—National Science Foundation
  • ODEP—Office of Disability Employment Policy
  • OSERS—Office of Special Education and Rehabilitative Services
    • NIDRR—National Institute on Disabilty and Rehabilitation Research
    • RERCs—Rehabilitation Engineering Research Centers

The Consortium for Citizens With Disabilities

The Consortium for Citizens with Disabilities (CCD) — CCD is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society. The organizations are:

  • AAN—American Academy of Neurology
  • AAP—American Academy of Pediatrics
  • AAPD—American Association of People with Disabilities
  • AAPM&R—American Academy of Physical Medicine and Rehabilitation
  • ACCSES—American Congress of Community Supports and Employment Services
  • ACB—American Council of the Blind
  • ACA—American Counseling Association
  • ADTA—American Dance Therapy Association
  • American Diabetes Association
  • AFB—American Foundation for the Blind
  • AMRPA—American Medical Rehabilitation Providers Association
  • AMTA—American Music Therapy Association
  • ANCOR—American Network of Community Options and Resources
  • AOTA—American Occupational Therapy Association
  • APTA—American Physical Therapy Association
  • ASHA—American Speech-Language-Hearing Association
  • ATRA—American Therapeutic Recreation Association
  • AER—Association for Education and Rehabilitation of the Blind and Visually Impaired
  • APSE—Association of People Supporting Employment First
  • AMCHP—Association of Maternal and Child Health Programs
  • AUCD—Association of University Centers on Disabilities
  • COPAA—Council of Parent Attorney and Advocates
  • DREDF—Disability Rights Education and Defense Fund, Inc.
  • DEC/CEC— Division for Early Childhood of the CEC
  • Easter Seals
  • Epilepsy Foundation
  • Goodwill Industries International, Inc.
  • Half The Planet
  • HKNC—Helen Keller National Center
  • HECSE—Higher Education Consortium for Special Education
  • IRI—Inclusion Research Institute
  • IDA—International Dyslexia Association
  • Justice in AgingFormerly known as National Senior Citizens Law Center
  • LDA—Learning Disabilities Association of America
  • NAEH—National Alliance to End Homelessness
  • NAAOP—National Association for the Advancement of Orthotics and Prosthetics
  • NAON—National Association of Orthopaedic Nurses
  • NAPSEC—National Association of Private Special Education Centers
  • NARRTC—National Association of Rehabilitation Research and Training Centers
  • NASN—National Association of School Nurses
  • NASP—National Association of School Psychologists
  • NASW—National Association of Social Workers, Inc.
  • NASDSE—National Association of State Directors of Special Education
  • NCLD —National Center for Learning Disabilities
  • NCPSSM—National Committee to Preserve Social Security and Medicare
  • NCCBH—National Council for Community Behavioral Healthcare
  • NIB—National Industries for the Blind
  • National Information Center for Children and Youth with Disabilities (NICHCY)
  • NISH — National Industries for the Severely Handicapped
  • NMSS—National Multiple Sclerosis Society
  • NOSSCR—National Organization of Social Security Claimants' Representatives
  • NOD—National Organization on Disability
  • NRA—National Rehabilitation Association
  • NRC—National Respite Coalition
  • NTRS—National Therapeutic Recreation Society
  • PVA—Paralyzed Veterans of America
  • SSWAA—School Social Work Association of America
  • SourceAmerica—SourceAmerica
  • SBAA—Spina Bifida Association of America
  • TASH—Equity, Opportunity and Inclusion for People with Disabilities since 1975
  • TED/CEC—Teacher Education Division of the Council for Exceptional Children
  • T.II.C.A.N.N.—Title II Community AIDS National Network
  • TSA—Tourette Syndrome Association, Inc.
  • UCPA—United Cerebral Palsy Association

University Centers of Excellence in Developmental Disabilities (UCEDD)

Alabama (Civitan International Research Center)
Alaska (Center for Human Development)
American Somoa (Pacific Basin Program)
Arizona (University Center on Disabilities)
Arkansas (Institute for Disability Studies)
California (Tarjan Center for Disabilities at UCLA)
Colorado (JFK Partners)
Connecticut (A.J. Pappanikou Center for Developmental Disabilities)
Delaware (Center for Disabilities Studies)
District of Columbia (The Georgetown University Center for Child and Human Development)
Florida (Mailman Center for Child Development)
Georgia (Institute on Human Development and Disability)
Hawaii (Center on Disability Studies)
Idaho (Center on Disabilities and Human Development)
Illinois (Institute on Disability and Human Development)
Indiana (Institute on Disability and Community at Bloomington)
Iowa (Center for Disabilities and Development)
Kansas (Schiefelbusch Institute for Life Span Studies)
Kentucky (Interdisciplinary Human Development Institute)
Louisiana (Human Development Center at New Orleans)
Louisiana (Children's Center at Shreveport)
Maine (Center for Community Inclusion)
Maryland (Kennedy Krieger Institute)
Massachusetts (The Eunice Kennedy Shriver Center at Waltham)
Massachusetts (Institute for Community Inclusion at Boston)
Michigan (Developmental Disabilities Institute)
Minnesota (Institute on Community Integration)
Mississippi (Institute for Disability Studies)
Missouri (Institute for Human Development)
Montana (The University of Montana Rural Institute)
Nebraska (Munroe-Meyer Institute for Genetics and Rehabilitation)
Nevada University Center for Excellence in Developmental Disabilities (UCEDD)
New Hampshire (Institute on Disability)
New Jersey (The Elizabeth M. Boggs Center on Developmental Disabilities)
New Mexico (Center for Development and Disability)
New York (Rose F. Kennedy UCE at the Bronx)
New York Strong Center for Developmental Disabilities (SCDD)
New York (Westchester Institute for Human Development at Valhalla)
North Carolina (Center for Development and Learning)
North Dakota (North Dakota Center for Persons with Disabilities )
Ohio (Cincinnati Childrens Division of Developmental Disabilities)
Ohio (Nisonger Center at Columbus)
Oklahoma (Center for Interdisciplinary Learning and Leadership)
Oregon (Center for Excellence in Developmental Disabilities)
Oregon (Oregon Institute on Disability & Development at Portland)
Pennsylvania (Institute on Disabilities at Temple University)
Puerto Rico (Puerto Rico Institute on Developmental Disabilities)
Rhode Island (Paul V. Sherlock Center on Disabilities)
South Carolina (Center for Disability Resources)
South Dakota (Center for Disabilities)
Tennessee (Boling Center for Disabilities at Memphis)
Tennessee The Center for Child Development at Monroe Carell Jr. Children's Hospital at Vanderbilt
Texas (Texas Center for Disability Studies)
Utah (Center for Persons with Disabilities)
Vermont (Center on Disability and Community Inclusion)
Virginia (Virginia Institute for Developmental Disabilities)
Washington (Center on Human Development and Disabilities)
West Virginia (Center for Excellence in Disabilities)
Wisconsin (Waisman Center)
Wyoming (Wyoming Institute for Disabilities (WIND)

Intellectual and Developmental Disability Research Centers (IDDRC’s) by State

Alabama (Civitan International Research Center)
California (Intellectual and Developmental Disabilities Research Center)
Colorado (B. F. Stolinsky Research Laboratories)
Connecticut (Yale Child Study Center)
Florida (Mailman Center for Child Development)
Kansas (Schiefelbusch Institute for Life Span Studies)
Kansas (Smith Intellectual and Developmental Disabilities Research Center)
Maryland (Kennedy Krieger Institute)
Massachusetts (The Eunice Kennedy Shriver Center at Waltham)
Massachusetts (The Children's Hospital at Boston)
New York (Rose F. Kennedy Center at the Bronx)
New York (Institute for Basic Research in Developmental Disabilities)
North Carolina (Mental Retardation & Developmental Disabilities Research Center)
Tennessee (John F. Kennedy Center for Research on Human Development)
Texas (Intellectual and Developmental Disabilities Research Center)
Washington (Center on Human Development and Disability)
Wisconsin (Waisman Center)

Intellectual and Developmental Disability Organizations and Resources

Alzheimer's Disease

Brain Injury

  • Brain Injury Association—brain injury prevention, research, education and advocacy.
  • NASHIA—National Association of State Head Injury Administrators

Cerebral Palsy

Mental Health

  • AACAP—The American Academy of Child & Adolescent Psychiatry
  • APA—The American Psychological Association.
  • Bazelon Center for Mental Health Law
  • CHADD—Children & Adults with Attention Deficit/Hyperactivity Disorder
  • CCBD—Council for Children with Behavioral Disorders
  • FFCMH—Federation of Families for Children's Mental Health
  • NAMI - The National Alliance for the Mentally Ill
  • NMHA—National Mental Health Association
  • NASMHPD—National Association of State Mental Health Program Directors

General

  • Family Village—a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.